If you are recently
diagnosed with CRPS I truly hope you find the information you need to make some good
decisions on your care and how to make the adjustments in your life to still
learn to live life to its new
full potential. You will have to make some compromises and some big
adjustments, but the most important thing is to keep a positive outlook and
reduce the stress in your life. Stress increases pain!!! That's a fact when it
comes to CRPS!
I hope that family
members and caretakers will take the time to get educated so that they will
understand more about what you are going through and how to care for you
better. Awareness of CRPS or RSD (reflex sympathetic dystrophy) is severely
lacking in the general public, but where a lot of damage has been done is in
the lack of knowledge that exists in the medical community and in battling Workman’s
Compensation to get timely and effective early treatment to help lessen the
severity and possibly thwart a lifetime of pain.
Most people diagnosed
within the first three months, after the onset of CRPS/RSD, if treated aggressively,
have a chance of lowering the extent of pain they will suffer and also have a
much greater chance of possibly being treated into remission. Yes that's
right... remission is possible, but the odds are greatly increased with an
early diagnosis and treatment within the first three months.
That's why having the
medical community informed about the symptoms can make the greatest difference.
Your understanding and early diagnosis can mean the difference in quality of a person’s
life, like no other means currently available can.
Thank you for taking
the time to come here to take the first step to learn more about this awful
disease/syndrome and I hope you come away with the means to prevent even one more
person from having to come here to find a way to make their life more manageable.
To the people in the
CRPS/RSD family who are here to find a way to make their lives easier, your
input is essential. Please feel free to
contact me with input, questions or comments.
I am more than happy to get back to you.
For those of you that
have come here to gather information on CRPS and to see what are needs are… I am seeking additional funding to push
forward the much needed research in the United States on treatments such as
Stem Cell Therapy (utilizing the patient own Stem Cells); Ozone Blood Therapy;
Procaine Therapy; Ozone Therapy; Electro Therapy; etc… I also need funding to work with the FDA to
get approval for some of these alternative treatments, alternate medications,
and ways to assist patients to get the much needed treatment they need!
Please contact me
at: Winthewaragainst.crps@gmail.com
Or
T. Patterson
14242 Raintree Rd.Tustin, CA 92780
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