As a patient of CRPS since 2008; an individual that has gone through all of the "traditional" treatments and even many of the "non-traditional" treatments it boggles my mind how people can ignore CRPS as if it doesn't exist!
Open your eyes... in the United States alone there are statistics showing that approximately 1.2 Million Americans have CRPS! This figure includes everyone from children; who don't and can't understand what has happened to them that is causing them immense pain; to adults that also can't understand why in this day and age of technology and advances in medicine - that more research is NOT happening to give us options, treatments, etc...
People pay attention to those disease that they know and understand... Trust me, I am not taking anything away from these other diseases such as Cancer, especially since I have had more than one family member that has had cancer. Most recently I've had a close family member that was diagnosed with stage 3-4 Metastatic Melanoma that was in her Lymph system. She opted not to do Chemo Therapy or Radiation... instead she went with "Alternative Therapies"... went outside the U.S. to received treatment and within 2 weeks she was tested and had zero cancer cells left in her Lymph system or her body!
Although rapid research is not happening on CRPS in the United States - it is happening in other Countries such as Germany and Europe. Now it is time of the United States and the FDA to step up to the plate to make a difference for those of us that so desperately need it!
As I've said previously, CRPS is one of the most painful, life changing diseases / syndromes that is out there. It a matter of one (1) doctor's appointment and hearing those words, "I don't know how to tell you this... (pause)... you do have CRPS" - this changes your life, the way you live it, and the lives of your entire family too. The sleepless nights, nights that you cry yourself to sleep due to the sure pain that will not let up no matter how much pain medicine you take. Your spouse or significant other watching you day in and day out in pain, not being about to help you, feeling helpless and leaving them with a sense of loss too. This is a cruel disease that doesn't discriminate!
I'm asking for anyone that takes the time to read this to consider donating to the cause to help raise the funds assist with the much needed research in the United States, the progress we need with the FDA and assistance with other CRPS patients.
Please contact me to discuss CRPS or to donate towards the cause. I can be contacted at: Winthewaragainst.crps@gmail.com or contact me via snail mail at:
T. Patterson
14242 Raintree Rd.
Tustin, CA 92780
Imagine being an active individual then you have a surgery by a doctor that you trust, but somehow an error is made in the surgery that leaves you with a disease called CRPS. I will never forget that day! Imagine being told that you've been diagnosed with a disease called CRPS (Chronic Regional Pain Syndrome), it has no cure.
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